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ALS FRSr Survey

Birthday
Month
Day
Year
My type of ALS
Military service
Where do you live?

Speech

4. Normal.

3. Detectable speech distrubance.

2. Intelligble with repeating.

1. Speech combined with non vocal communication.

0. Loss of useful speech.


Salivation

4. Normal.

3. Slight but definite excess of saliva in mouth, may have nighttime drooling.

2. Moderately excessive salivia; may have minimal drooling.

1. Marked excess of saliva with some drooling.

0. Marked drooling requires constant tissue or handkerchief.

Swallowing

4. Normal.

3. Early eating problems- occasional choking.

2. Dietary consistency changes.

1. Needs supplemental tube feeding.

0. Nothing by mouth (tube feeding)

Handwriting

4. Normal.

3. Slow or sloppy, all words are legible.

2. Not al words are legible.

1. Able to grip pen but unable to write.

0. Unable to grip a pen.

Cutting Food (no gastrostomy tube)

4. Normal

3. Somewhat slow and clumsy, but no help needed.

2. Can cut most foods, althourh clumsy and slow, some help needed.

1. Food must be cut by soneone, but can still feed slowly.

0. Needs to be fed.

Cutting Food (with gastrostomy tube)

4. Normal.

3. Clumsy but able to perform maniupulations independently.

2. Some help needed with closures and fastners.

1. Provides minimal assistance to provider.

0. Unable to perform any aspect of task.

Dressing and Hygiene.

4. Normal.

3. Independent and complete self-care with effort or decreased efficiency.

2. Intermittent assistance or substitute methods.

1. Needs attendant for self care.

0. Total Dependence.

Turning in Bed

4. Normal.

3. Somewhat slow and clumsy but no help needed.

2 Can turn alone or adjust sheets, but with great difficulty.

1. Can initiate, but not turn or adjust sheets alone.

0. Helpless.

Walking

4. Normal.

3. Early ambulation difficulities.

2. Walks with assistance.

1. Non-ambulatory functional movement only.

0. No purposeful leg movements.

Climbing Stairs

4. Normal.

3. Slow.

2. Mild unsteadiness or fatigue.

1. Needs assistnce.

0. Cannot do.

Shortness of Breath

4. None.

3. Occurs when walking.

2. Occurs with one or more of the following: eating bathing, or dressing.

1. Occurs at rest, difficulty breathing when either sitting or lying.

0. Significiant difficulty, considering using mechanical respiratory support.

Short of breath when lying down.

4. None.

3. Some difficulty sleeping at night due to shortness of breath. Does not routinely use more than two pillows.

2. Needs extra pillow in order to sleep (more than two).

1. Can only sleep sitting up.

0. Unable to sleep.

Respiratory insufficiency

4. None.

3. Intermittent use of BiAP.

2. Continous use of BiPAP.

1. Continous use of BiPAP durning the night and day.

0. Invasive mechanincal ventilation by intubation or tracheostomy.

Please check your answers before submitting.


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