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Thank you again for offering to help others.  

ALS  is complicated puzzle that has confounded medical science to date. What we do know is that early intense therapy makes a difference (see study below).  Care that includes early diagnosis by a neurologist, nutritional support, early gastric feeding tube, medication, and early respiratory support. For all that we still fall short.  

 

Specialized multidisciplinary care improves ALS survival in Belgium: a population-based retrospective study

Frederik Hobin,Joke De Vocht, Nikita Lamaire 9/2023

ALS Disease Slope varies by type and age.

Bulbar ALS has a much faster disease slope than does "Classic" ALS  and thus will have a  slope closer to the fast progressors in the chart above.

My ALS Functional Rating Scale
Speech
Salivation
Swallowing
Handwritting
Cutting food and handling utensils. No Gastrostomy tube.
Cutting food and handling utensils. With Gastrostomy.
Dressing and hygine
Turning in bed and adjustion bed clothes.
Walking.
Clmbing stairs.
Problems breathing
Problems breathing laying down
Breathing Insufficiency
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